Going through medical problems right now and it’s disheatening. The doctor isn’t listening to me.?
I’m 15 years old with osteoporosis, osteogenesis imperfecta, a gluten allergy, and some unknown issue causing joint pain, me falling to ground involuntarily (not fainting), and inflammation. I’ve broken 16 bones. The doctors don’t know why I have any of the above.
Last Tuesday, I went to a hip specialist and he was basically my last hope for a MRI or treatment, as I just want to make sure it isn’t something serious like cancer. He totally didn’t listen to me and said it was my fault because my muscles were too weak becuase I wasn’t excercising. I told him when I was excercising it was the exact same. He just told me to wait six months and excerise as it was growing pains. I’ve had growing pains and these are nothing like them. The pain is isolated, not shooting down my legs.
I need a referrel from him to visit any of the other doctors because the rest of them are high up on the ladder, but he won’t. I’ve pretty much lost hope at this point and am still worried about what’s going on.
I’m a little bummed as I can’t do what a lot of kids do everyday: i.e. ride a bike, run, or play a sport. How can I stay strong and get through these years?
The doctor told me gluten doesn’t affect me and isn’t causing me pain.